An international team of scientists, led by researchers at the Oregon Health and Science University, has used genetic engineering on human sperm and a pre-embryo. The group says is doing basic research to figure out if new forms of genetic engineering might be able to prevent or repair terrible hereditary diseases. Congress has banned federal funding for genetic engineering of sperm, eggs, pre-embryos or embryos. That means everything goes on in the private or philanthropic world here or overseas, without much guidance. It should be determined who should own the techniques for genetic engineering. Important patent fights are underway among the technology’s inventors. Which means lots of money. is at stake. And that means it is time to talk about who gets to own what and charge what. Finally, human genetic engineering needs to be monitored closely: all experiments registered, all data reported on a public database and all outcomes — good and bad — made available to all scientists and anyone else tracking this area of research. Secrecy is the worst enemy that human genetic engineering could possibly have. Today we need to focus on who will own genetic engineering technology, how we can oversee what is being done with it and how safe it needs to be before it is used to try to prevent or fix a disease. Plenty to worry about.
August 7, 2017